I Have OCD. No, for Real!

I'm pretty open about my struggles with mental illness. I don't broadcast that I'm living with mental illness, but I do share it when it's appropriate. Most of the time when I share that I have bipolar disorder, people say "Oh". Some share that they have bipolar too or that they have someone in their family or circle of friends that has it. But it's a whole different experience when I share that I have obsessive compulsive disorder, or OCD. When I share that, I get this response, almost 100% of the time: "(Laughter) Me too!" People then go on to describe how they have to have pictures hanging perfectly straight on the wall or tell me how everything on their dresser has it's own spot and it drives them crazy if something is moved. When I hear these kinds of things, my insides start churning and I feel the anxiety building. While I don't doubt that those things are true for my friends, I also can't help but wonder if they truly have OCD. I believe that most everyone has some things that they have to have "just so" or it drives them crazy. But not everyone has true, clinical OCD.

Obsessive compulsive disorder can be extremely debilitating. That is the case for me. I had "rules" about how things should be as early as five years old. In kindergarten, I refused to share my crayons. The teacher wanted all of us to dump our crayons in a big bowl for everyone to share. I couldn't do that. I needed mine to stay in the box, in a specific order, with the labels facing front. No one could touch my crayons. I had a very detailed way to sort my M&Ms before I could eat them. As a result, I couldn't eat my baggie of M&Ms in the car on the way to my grandparents house because there was nowhere to lay them all out to sort them. These might not seem like they should be a big deal, but my rules kept increasing in number and complexity and I began to develop rituals that were very demanding and unforgiving. I started counting - EVERYTHING. I started checking - EVERYTHING. Over and over and over again. My rituals began to take up more of my time. I can't not do them because if I don't do them, something bad might happen. I don't know what that might be, but the anxiety is there.

Fast forward to today. It takes me approximately five hours to dust one bookshelf. I have to dust each book and then place it back in it's spot (my books are alphabetized by author). I will put the book back on the shelf and then keep touching it and scanning the shelf to be sure that everything is still in alphabetical order. Then I have to dust the pictures, candles, etc. I actually measure where to put them back so that everything is centered and symmetrical on the shelf. It is a very exhausting process. So, I no longer dust. It is less anxiety inducing to have dusty shelves than to spend five hours dusting one bookshelf. And I still can't totally break free of making sure the books haven't moved. I check my books when I get up in the morning and I check them before I leave my house and when I get home. I know in my head that they probably haven't moved, but I can't break the compulsion to check them. Then there's the counting. My mind is almost always counting. I count my steps when I walk. I count when I'm anxious. My mind won't stop counting at night when I'm trying to go to sleep. I literally have dozens of notebooks that are nothing more than numbers that I've written.

Then there are the obsessive thoughts. I have 3 cats that I love dearly. I would never do anything to harm them and yet I have an intrusive thought that pops into my mind from time to time - I wonder what it would be like to tie a rope around their necks and hang them from the ceiling fan and watch them spin around and around? How sick is that? This is highly distressing for me and leaves me feeling full of guilt and shame for even having such a thought. 

So, maybe you're thinking "Gosh, that would be tough." And you'd be right. But I want to share one more example of just how debilitating OCD can be. Shortly after I was raped, I developed a bathing ritual. At the time, I felt like I'd never feel "clean" again. Once I started that ritual I found that I couldn't stop it. I have been struggling with it for 30 years now. It takes me about 90 minutes to shower. I bathe and then I repeat the whole process four times. I always run out of hot water. By the end of my shower, the water is ice cold. My teeth are chattering. My fingers and toes and lips are blue. Yet I can't not stay in there. This past year, the pain in my knees has gotten so severe that I just cannot physically stand in the shower for 90 minutes anymore. I'm doing good to be able to stand for 10 minutes. I've taken a couple of 10 minutes showers. I end up sobbing as I get out of the tub because I haven't completed my ritual. I cry to the point of making myself physically sick. My mind starts racing and obsessing on the fact that I'm not "clean" enough. The anxiety is crushing. So, and I know most of you will find this hard to grasp, I have not taken a shower since January 23. Yes, it's been 5 months since I've showered. You see, I'd rather go without a shower than to take a shower without being able to complete my ritual. To me, it is the lesser of the two evils. I've been trying to find a shower chair to fit in my tub, hoping that that would allow me to perform my ritual with some minor adjustments but I have a narrow tub in my apartment and we haven't been able to find anything that works yet. So, I don't shower. I know that that is disgusting. And I've had several incidences of skin breakdown. I just treat that the best I can and deal with the itching and burning that comes along with it. I walk into my bathroom EVERY SINGLE DAY and stand in front of the bathtub trying to talk myself into getting in there to shower. Every time I end up crying. I feel this sort of tightening in my chest and it becomes harder and harder to breathe. I start to shake. My head is spinning. So, I turn around and go back into my bedroom and layer on the deodorant and body spray and lotion . THIS IS WHAT OCD CAN LOOK LIKE!

There are medications which can be used to treat OCD. However, since I also have bipolar disorder, my doctor is not willing to prescribe the recommended medications because of the risk of triggering a manic episode. Unfortunately, my OCD and PTSD must take a "back seat" to my bipolar disorder. I'm scared that my OCD is going to completely take over my life. I have so, so many more obsessions and compulsions that are a part of my daily life. Way too many to share. I wanted to share this as an example of what OCD can look like. I'm not saying that others don't have OCD. It can be present to varying degrees in a person's life. But the phrase "I'm so OCD" gets tossed around very casually and we joke about our "quirky" behaviors and laugh it off. But for some of us, OCD is no laughing matter. Never in my whole life did I ever think that I'd be unable to do something as basic as taking a shower. For me, OCD is real. It's effect on my life has been profound. At times, the need to perform my rituals is so strong that I can't resist it. There are times I have to cancel plans, or not even make them in the first place, because I can't get away from the compulsive behaviors to actually leave my house. I pray that, with the help of my therapist and case manager, I can learn to adapt. I pray my symptoms won't continue to get worse. I pray that when you say "I'm so OCD" you're not struggling the way I struggle. It's no way to live.